Mission
To provide leadership to advance the development, implementation and use of health preference research in support of health policy, the development of medical products, and patient care.
Goal
- To foster discussions about known and novel methods to obtain preference information and to analyze health-preference data in support of standards for the use of these methods
- To support early career researchers interested in the field of health preference research through involvement in the SIG activities
- To facilitate the dissemination of good practices for the methods used to collect and analyze health preferences in the HEOR community
- To identify and highlight ways in which preference evidence can support patient care and health policy and health economics and outcomes research
Background
Scientifically rigorous evidence on priorities and preferences is important in promoting patient-centered drug development, facilitating patient-centered outcomes research (PCOR), informing regulatory benefit-risk analysis, and conducting robust health technology assessment (HTA). Health preference research focuses on the development of instruments and other mechanisms to measure preferences for aspects of health policies, medical products, and patient care. These aspects are systematically evaluated by relevant stakeholders to determine their relative importance. The resulting measures of relative importance offer a unique way to understand the value of health-related initiatives and products. The broad array of methods and the ability to modify them allows their use for any number of research questions.
Manuscripts & Reports
- Accounting for Preference Heterogeneity in Discrete-Choice Experiments: an ISPOR Special Interest Group Report
- Health Preference Research in Europe: A Review of Its Use in Marketing Authorization, Reimbursement, and Pricing Decisions—Report of the ISPOR Stated Preference Research Special Interest Group
Webinars
- Innovative Uses of Technology to Advance Health Preference Research
- Preventing, Detecting, and Analyzing Data From Suspected Fraudulent Respondents in Online Surveys, with Examples From Health Preference Studies
- Health Preference Research in the Context of Gene Therapy in Rare Diseases - September 2021
- Supporting Covid19-Related Decision Making with Health Preference Research
- Why and How to Use Qualitative Research Methods in Conjunction with Discrete Choice Experiments in Health Care
Presentations
- ISPOR Europe 2023 Forum: Health Preference Research and Value Assessment Frameworks in Digital Health Technologies
- ISPOR Europe 2022 Open Meeting / Forum: Attribute Selection - More Challenging Than You Thought! (PDF)
- ISPOR Europe 2021 Forum: When and How Can Health-Preference Measures Be Transferred Between Contexts?
- ISPOR Virtual 2020 Workshop: We Are Not All the Same - The State of Practice in Accounting for Preference Heterogeneity
- ISPOR Europe 2019 Workshop: Health Preference Research Special Interest Group - Choice Defines Value - Decisions, Steps, Obstacles and Outreach in Health Preference Research
Leadership
Chair-Elect
Chair
Past Chair
Operational Lead
Ahmed Osman, MSc, BSc
Working Groups
Member Engagement
These activities allow for a variety of members to participate and also facilitates disseminating content in webinars and conference sessions.
Co-Chairs:
Hannah Penton
Yuan Zhang
Key Project
The Use of Quantitative Health Preference Methods for Individual Value Clarification in Shared Decision Making
Co-Chairs:
- Janine van Til, PhD; Assistant Professor, University of Twente, Enchede, the Netherlands
- Holly Peay, PhD, Senior Research Scientist, RTI Health Solutions, Research Triangle Park, NC, USA
Questions or ideas? Please send an email.
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